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Bill Nye the Science Guy is speaking at the 2024 Annual Ataxia Conference! Register now.  LEARN MORE!

Our Vision:

A World Without Ataxia.

Ensuring no one experiences Ataxia alone, until no one experiences Ataxia, period.

Our Mission

To accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.

Join ACCELERATE! To Get Involved

Accelerate! is a $1 million annual fund to accelerate our ability to improve the lives of those living with Ataxia. It is designed to raise funds in order to speed up our advocacy efforts, including:

  • New legislation important to our community and progress
  • Add more resources for the 65+ support groups
  • Educate our community about genetic testing including providing genetic counseling and testing for all those living with Ataxia 
  • Create a national, regional, and local Ataxia Awareness campaign to accelerate the understanding of Ataxia.

Become a Member of NAF for FREE!

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Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:

  • News and research opportunities about their specific type of Ataxia as it becomes available.
  • Early access to free webinars
  • NAF’s eNewsletter and Generations publications. 

NAF BLOGS

Benefits of Rehabilitative Services

Guest Author: Ellie Martin According to the World Health Organization, rehabilitation is defined as “a set of interventions designed to optimize functioning and reduce disability in individuals with health conditions Read More…

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David Beavan

When I was a teenager I remember my father used to weave a little when he walked. We played a lot of golf, and he often toppled over when he Read More…

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Ataxia Med News – April 2024

This is a periodic newsletter for Ataxia clinicians to keep them up-to-date on patient resources and other medical news. To begin receiving this newsletter, join as a professional member of Read More…

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Jerry’s Story

I’m actually reluctant to tell my story as it’s far from positive. Currently my tremors are more disabling than my balance issues, which are dreadful. I suppose I noticed things Read More…

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Accessible Activities in Florida

Are you traveling somewhere? Don’t assume that an activity isn’t accessible! Jessica, who has Ataxia and uses a wheelchair, traveled to the Florida Keys with her parents in June 2023. Read More…

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WHAT IS ATAXIA?

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EVENTS

May 21, 2024 01:00 pm - 02:00 pm
Johns Hopkins University Support Group Meeting

EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

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May 22, 2024 01:00 pm - 02:00 pm
Johns Hopkins University Music Therapy Session

EASTERN TIME ZONE This group is based around music listening: sharing songs, listening together, and reflecting on the music and lyrics.   Meeting Information Spring Music Therapy sessions run every Read More…

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May 23, 2024 03:00 pm - 04:00 pm
Colorado Support Group Meeting

MOUNTAIN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

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May 24, 2024 02:00 pm - 03:30 pm
Chicago Support Group Meeting

CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

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